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Woensdag 18 december om 16.30 uur tekenen beide partijen de overeenkomst en is de nieuwe epilepsie-organisatie een feit.\u003C\u002Fp>\n\u003Cp>\u003Cstrong>Eén loket voor vragen over epilepsie\u003C\u002Fstrong>\u003C\u002Fp>\n\u003Cp>Martin Boer, directeur van het Epilepsiefonds, laat weten erg enthousiast te zijn over de nieuwe ontwikkeling: “Mensen belden vaak naar het Epilepsiefonds met vragen waarvoor ze eigenlijk bij de EVN moesten zijn. Vanaf 1 januari is dat verleden tijd. Dan vormen we één loket voor iedereen die met epilepsie te maken heeft, op welke manier dan ook.” Marita Meulmeester, voorzitter van de EVN, benadrukt dat. “Door onze krachten te bundelen, verwachten we de bestaande overlap te verminderen.”\u003C\u002Fp>\n\u003Cp>\u003Cstrong>Recht van spreken\u003C\u002Fstrong>\u003C\u002Fp>\n\u003Cp>De combinatie van fonds en vereniging ziet Boer als kracht. “De EVN vraagt als belangenbehartiger aandacht voor mensen met epilepsie en hun naasten en brengt ze met elkaar in verbinding om ervaringen te delen. Het Epilepsiefonds werft fondsen en subsidieert bijvoorbeeld wetenschappelijk onderzoek om een oplossing te vinden voor epilepsie.” Meulmeester benadrukt dat deze samenwerking gaat leiden tot een grotere slagkracht. “De stem van mensen met epilepsie zal nu harder kunnen gaan klinken.”\u003C\u002Fp>\n\u003Cp>\u003Cstrong>Activiteiten\u003C\u002Fstrong>\u003C\u002Fp>\n\u003Cp>De EVN draagt haar activiteiten over aan het Epilepsiefonds. Het fonds zorgt ervoor dat de patiëntenactiviteiten worden uitgevoerd. 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Op zes verschillende locaties wordt de s",{"id":557,"title":558,"pubDate":559,"logoUrl":528,"thirdParty":10,"imageUrls":560,"orgId":16,"branches":562,"description":564},"71215487-fc93-4fda-b631-4f4be73d1dce","Levensreddend hulpmiddel epilepsie niet vergoed","2025-12-02T06:00:00.827+01:00",[561],"https:\u002F\u002Forder.perssupport.nl\u002Ffile\u002Fpressrelease\u002F5a4aaa0e-5ce0-45b9-af2b-77f44f049e2a\u002F71215487-fc93-4fda-b631-4f4be73d1dce\u002F20251127samenvattingdossieraanvalsdetectie.pdf",[563],{"id":21,"title":349},"Houten, 2 december 2025 - Vergoeding van de Nightwatch, een erkend medisch hulpmiddel dat epileptische aanvallen detecteert, is afgewezen door Zorginstituut Ned",{"id":566,"title":567,"pubDate":568,"logoUrl":528,"thirdParty":10,"orgId":16,"branches":569,"description":571},"aaab5630-8285-48fb-b962-25b73344a441","Nog geen genezing voor epilepsie: EpilepsieNL roept op tot meer onderzoek en begrip","2025-11-03T06:00:06.618+01:00",[570],{"id":21,"title":349},"Houten, 3 november 2025 – In Nederland leven ruim 200.000 mensen met epilepsie, een aandoening die nog altijd niet te genezen is. 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Meer dan duizend wandelaars en hardlopers ",{"id":582,"title":583,"pubDate":584,"logoUrl":528,"thirdParty":10,"orgId":16,"branches":585,"description":587},"6dc50f63-92a2-40e1-bd0e-202189a6e69f","EpilepsieLoop 11 oktober: meer kennis over epilepsie hard nodig","2025-09-15T06:01:00.043+02:00",[586],{"id":21,"title":349},"Amersfoort, 15 september 2025 – Plotseling bewusteloos vallen op straat, je baan verliezen door onvoorspelbare aanvallen of niet mogen autorijden: voor mensen m",{"id":589,"title":590,"pubDate":591,"logoUrl":528,"thirdParty":10,"imageUrls":592,"orgId":16,"branches":594,"description":596},"5ebc93d6-2e22-4814-97a2-8f1490104e2e","Lancering nieuw waarschuwingsicoon voor lichtflitsen ","2025-07-07T00:01:00.047+02:00",[577,593],"https:\u002F\u002Forder.perssupport.nl\u002Ffile\u002Fpressrelease\u002F5a4aaa0e-5ce0-45b9-af2b-77f44f049e2a\u002F5ebc93d6-2e22-4814-97a2-8f1490104e2e\u002FPersberichtNieuwwaarschuwingsicoonvoorlichtflitsenEpilepsieNL.pdf",[595],{"id":21,"title":349},"EpilepsieNL lanceert vandaag, in wetenschapsmuseum NEMO Science Museum in Amsterdam, een speciaal waarschuwingsicoon voor lichtflitsen. 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