[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"article-2be252fc-8262-4ca4-8adb-80bf1e37b529--":3,"related-articles-undefined-undefined-343a8fd2-07cc-458c-8304-3e355355db01-true":18},{"id":4,"type":5,"title":6,"pubDate":7,"logoUrl":8,"anpFeedCategory":9,"organisationTitle":10,"thirdParty":11,"body":12,"note":13,"city":14,"website":15,"orgId":16,"description":17},"2be252fc-8262-4ca4-8adb-80bf1e37b529","PRESSRELEASE","Nieuw ME advies Gezondheidsraad, nieuw beleid ME\u002FCVS Stichting Ned.","2017-10-06T17:00:35.575+02:00","https:\u002F\u002Fwww.persberichten.nl\u002Ffile\u002Flogos\u002F343a8fd2-07cc-458c-8304-3e355355db01\u002F5c83ce98-e4c3-4906-bf62-800a1d460782.jpg","Binnenland","ME\u002FCVS Stichting Nederland",false,"\u003Cp>\u003Cem>De gedachte dat ME\u002F\u003C\u002Fem>\u003Cem>CVS patiënten\u003C\u002Fem>\u003Cem> een ziekte hebben die tussen de oren zit, kan op grond van het IoM rapport \u003C\u002Fem>\u003Cem>en de analyse van de PACE \u003C\u002Fem>\u003Cem>tr\u003C\u002Fem>\u003Cem>ia\u003C\u002Fem>\u003Cem>l\u003C\u002Fem>\u003Cem> \u003C\u002Fem>\u003Cem>niet meer worden volgehouden.\u003C\u002Fem> \u003C\u002Fp>\n\u003Cp>De ME\u002FCVS Stichting Nederland presenteert een nieuw beleid, dit naar aanleiding van het advies dat de Gezondheidsraad in het voorjaar 2018 uitbrengt aan de Tweede Kamer. In de nieuwe beleidsvisie stelt de Stichting om de aanpak van ME\u002FCVS mogelijk te maken door te streven naar:\u003C\u002Fp>\n\u003Cp>1. Erkenning: door opname in typeringenlijst NZA, vergoede fysiotherapie vanaf de 21e behandeling, Systematische registratie door RIVM.\u003C\u002Fp>\n\u003Cp>2. Onderzoek: door opzetten meerjarig onderzoeksprogramma, keuze maken voor diagnostische criteria, prioritering van het onderzoek.\u003C\u002Fp>\n\u003Cp>3. Behandeling en zorg bundelen: door opzetten expertisecentra, verbeteren zorg patiënten en symptoombestrijding, speciale aandacht voor ernstige patienten.\u003C\u002Fp>\n\u003Cp>Zie ook: http:\u002F\u002Fmecvs.nl\u002Fwp-content\u002Fuploads\u002F2017\u002F01\u002FBeleidsvisie_ME_in_Nederland_ME_CVS_Stichting.pdf \u003C\u002Fp>\n\u003Cp>De Gezondheidsraad brengt in het voorjaar een advies uit aan de Tweede Kamer over de ziekte ME\u002FCVS. Zij baseert zich op het Amerikaanse Institute of Medicine (IoM) dat in een rapport de stand van de wetenschap in kaart heeft gebracht over ME\u002FCVS. De belangrijkste boodschap van dit metaonderzoek: ME\u002FCVS is een ernstige, chronische, complexe multisysteem ziekte die vaak en dramatisch de activiteiten en de levens van de getroffen patiënten beperkt.\u003C\u002Fp>\n\u003Cp>De gedachte dat ME\u002FCVS patiënten een ziekte hebben die tussen de oren zit, kan op grond van het IoM rapport en de analyse van de PACE trial niet meer worden volgehouden. De aandoening kan bestaan uit aantasting van het afweersysteem, neurologische en cognitieve stoornissen, plotselinge veranderingen van de bloeddruk, slaapafwijkingen en disfunctie van het autonome zenuwstelsel. 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