[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"article-afd255a3-42c1-409e-a8b3-89cac00edfec--":3,"related-articles-undefined-undefined-343a8fd2-07cc-458c-8304-3e355355db01-true":420},{"id":4,"type":5,"title":6,"pubDate":7,"logoUrl":8,"anpFeedCategory":9,"organisationTitle":10,"thirdParty":11,"body":12,"note":13,"videoUrl":14,"imageUrls":15,"city":18,"website":19,"orgId":20,"branches":21,"description":419},"afd255a3-42c1-409e-a8b3-89cac00edfec","PRESSRELEASE","#GivingTuesday actie moet lot jongeren met ME\u002FCVS verbeteren","2019-12-02T16:46:46.008+01:00","https:\u002F\u002Fwww.persberichten.nl\u002Ffile\u002Flogos\u002F343a8fd2-07cc-458c-8304-3e355355db01\u002F5c83ce98-e4c3-4906-bf62-800a1d460782.jpg","Binnenland","ME\u002FCVS-Stichting Nederland",false,"\u003Cp>In Nederland lijden vermoedelijk 20.000 jongeren aan ME\u002FCVS (Chronisch Vermoeidheids Syndroom), een multi-systeem ziekte. Maar het merendeel weet dat niet. En loopt daarmee het risico op levenslang. Want juist bij jongeren kan een tijdige diagnose en behandeling het verschil maken tussen levenslang ziek of niet.\u003C\u002Fp>\n\u003Cp>De ME\u002FCVS Stichting Nederland start daarom vandaag voor #GivingTuesday een campagne op https:\u002F\u002Fmecvs.nl\u002Fziekofniet om ME\u002FCVS bij jongeren onder de aandacht te brengen.\u003C\u002Fp>\n\u003Cp>Onder het motto ‘Ziek of Niet…’ vertellen een aantal jongeren over hun ziekte en de strijd om acceptatie. Door voorlichting te geven, hoopt de stichting dat ME\u002FCVS eerder (h)erkend en serieus genomen gaat worden. Want daar is nog veel te verbeteren.\u003C\u002Fp>\n\u003Cp>Otto Albrecht, directeur ME\u002FCVS Stichting “Met deze campagne willen we jongeren, hun ouders, sociale netwerk én de zorgverleners bereiken om de bekendheid, acceptatie en behandeling van deze ziekte te verbeteren.”\u003C\u002Fp>\n\u003Cp>Het geld dat nodig is om de campagne uit te voeren, hoopt de stichting met deze actie te werven.\u003C\u002Fp>\n\u003Cp>Op de pagina https:\u002F\u002Fmecvs.nl\u002Fziekofniet kunnen mensen een donatie doen voor het project. Op de website is ook uitgebreide informatie te vinden over de ziekte, symptomen en behandeling.\u003C\u002Fp>\n\u003Cp>Over de ME\u002FCVS Stichting:\u003C\u002Fp>\n\u003Cp>De ME\u002FCVS Stichting Nederland, gevestigd in Hilversum, is de officiële patiëntenorganisatie voor mensen met myalgische encefalomyelitis (ME) en het chronisch vermoeidheidssyndroom (CVS). 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Dit naar aanleiding van de brief van ministe",{"id":1365,"title":1366,"pubDate":1367,"logoUrl":8,"thirdParty":11,"orgId":20,"description":1368},"59771267-51ca-402e-814c-141dedb5f9eb","Minister erkent ME advies, toezeggingen voor patiënten ontbreken","2018-12-13T10:00:00.078+01:00","Reactie ME[1] patiëntenorganisaties op de beleidsbrief van minister Bruins Op 11 december verscheen de reactie van minister Bruins op het advies van de Gezondhe",{"id":1370,"title":1371,"pubDate":1372,"logoUrl":8,"thirdParty":11,"imageUrls":1373,"orgId":20,"description":1376},"eec26a9d-ba8f-4ce8-9534-d01898c54885","12 mei Wereld ME-dag, oproep: zorg beter voor ME","2018-05-09T13:00:00.236+02:00",[1374,1375],"https:\u002F\u002Flh3.googleusercontent.com\u002F8lWfrpfSzzZChTNPTadZA8iIaPsohqF9J0iiYj8dF29JQQ44CMbyd8jOxUKpsBLTsXZ3C5bw30hEXc-sZsM9thUsELpVCYE6ZA","https:\u002F\u002Flh3.googleusercontent.com\u002FGThO1Zxa2UdoDuXpAsnRjXVgEyN3dGjhbw_8BZXzI77UyVfkLBzU0pOgUjaCcyf9-ItA5mYOtPbQqRUs94IizW239lb0bMY-","Op 12 mei is het Wereld ME-dag. Over de hele wereld wordt dan aandacht besteed aan de ernstige chronisch ziekte ME. Van Australië tot Finland vinden manifestati",{"id":1378,"title":1379,"pubDate":1380,"logoUrl":1381,"thirdParty":11,"imageUrls":1382,"orgId":20,"description":1386},"b4d71d4e-8221-496d-91e4-af962f4549f6","Actie voor gelijke behandeling, op 12 mei as. Wereld ME-dag","2018-05-07T12:16:18.320+02:00","https:\u002F\u002Fwww.persberichten.nl\u002Ffile\u002Flogos\u002F343a8fd2-07cc-458c-8304-3e355355db01\u002F2d689561-9f7e-4bfe-aef6-2162cb7a2257.jpg",[1383,1384,1385],"https:\u002F\u002Flh3.googleusercontent.com\u002FwSw76ec4t-9sv7fjRIco7cnVbvE94WbkYsSbk52jYZ0SnDyj-4PjUQzKERkQkbeWZYmoNRjA15hAhIxXr7VF09jqjo8zavjQ","https:\u002F\u002Flh3.googleusercontent.com\u002Fos1C33bIWMYYlCJcV6FIQQC3AZkoGAkJgBhWbUkgiPjwGpdJiezFHFBMyeYO4tbIrMmIGkCPKCIScBZUrBqvUmBV-QoaLag4hQ","https:\u002F\u002Flh3.googleusercontent.com\u002FkP7dewkcPMCnRa9kw_iE-cHRNT2kT0kzC6k1jd3gNpgbE08UfSISfqQV4DmDoGlVXPx9M3NcOfwqJ1Aj5s7XH1VNv8FqBN-K","Op 12 mei as., na zonsondergang, worden in heel Nederland een aantal belangrijke gebouwen en objecten blauw verlicht. Campagnegroepen #MillionsMissing voeren in"]